Hello everyone!
We had Landon's second appointment at Dartmouth yesterday. Dr. Stotland who we saw the first time just fell in love with little Landon. I hoped and prayed he would tell us to go home and not come back to see them, because Landon's skull shape was progressing as it should be and it's completely normal... I really was not expecting them to tell me there was still concern... Landon's head shape is still abnormal, and consistent with a sagittal suture fusion. Dr. Stotland said it was a very mild case, and he can't tell for sure, so he called his colleague, a pediatric neurosurgeon to come take a look at him.
Dr. Durham was wonderful. She too said she really couldn't tell for sure, but thinks the suture is partially fused. She pointed out his forehead bulges forward on one side, which is only noticeable if you look down from the top of his head. She also pointed out that one ear is pushed further toward his face than the other. I was flabbergasted that I had not noticed this, as I've been obsessed with looking at his skull shape since we found all of this out 2 weeks after his birth. He has a bump on the back of his head, which we were aware of and a flattening on the opposite side.
Normally she would have him go straight into surgery, but because it's such a gray area she wants to do a CT of his head. We are waiting for the call of when this appointment will be. We will meet with her after and she will give us the results then. If it is fused, he will be scheduled for surgery pretty quickly. Luckily this was caught early so the surgery is much less invasive and the recovery is much better. Landon would have endoscopic surgery and 2 incisions would be made.The first incision at the top of his skull and the second on the back side of his skull. They would cut the piece of skull that is fused out. After he would be fitted for a helmet. If the suture is not fused he will still wear a helmet 24/7 for 6 months. So we ask for prayers... hopefully he won't need surgery.
We will continue to keep everyone updated...
